We prepare to see Dr. Koch, infectious diseases at MCV and now when we are ready to leave the house for any medical appointment, Coleman gets very upset. He is just so fearful of docs. Jeff tries to reason with him because Coleman feels we are doing something to him that we should not. He always begs to stay home and just be with us, no one else but his family is his constant request. He has become uncomfortable around any others, so it's difficult to ask people to stay away.

True friends understand this and some have been so gracious as to bring food or whatever and I have quietly met us on the front porch. It's just so odd, because Coleman was perhaps the most social child I know using every Sunday to bargain us into a visit with his friends from church.

We go to this MCV with a very exhausted, defeated son who is skeptical of any doctor; he has seen so many with no results, that we understand his paranoia. Dr. Koch said infectious diseases was not the place for Coleman and he really could not help us with an admission. His resident physician prescribed us a sedative to get Coleman to the eastern shore of Maryland to see Dr. Ritchie Shoemaker, the toxic illness doctor. We leave from MCV and make the trip to the eastern shore. Coleman dry heaves almost all the way there, he is so nauseous and motion sick now, even a bump in the carpet under his wheelchair makes him gag. He is also so sensitive to pain that even picking him up from the wheelchair can make him yell in pain. His light sensitivity has become so great that when we are going into the hospital for the appointment, he keeps his hood up and head down.