Coleman's ammonia level is certainly coming down - he asked me to keep track of his bathroom status today and it's been a hoot. High ammonia has so many negative effects, especially on the liver, so I'm glad he's going so much.
I step up his level of herbal antibiotic daily so we stay aggressive. He was really tired last night but got a decent night's sleep. Today has been a pretty good day. We're getting to a point where I can tell when the meds are working on him.
Today we found an in home pediatric service that will draw the blood next week, probably Thursday. Since there are nearly 20 test the combined docs want to run, it will take two sticks or two trips. I'm glad we've got several days before then to get him stronger.
Coleman has taken a game stop gift Grammy Suz sent to him and added his Christmas money to order the new DSI. I guess it replaces the current DS and comes out in a couple of weeks. I'm thankful for that because he is living for that to come in the mail and he studies about all the things it can do. Just thinking about it gives him a pick up.
I watch him try to read something on TV or on the computer and wonder what he is seeing. He always tells me he sees three of me...poor guy - three of his unshowered mom!
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Mel, I know we haven't talked in a long time (all I do is work), but Scott W's blog brought your family's situation to my attention. If the Big Guy whose name I use too often in vain hasn't given up on me, I sent a few words in your direction. Hang in and know that people are thinking of you all in this.
ReplyDeletettaylor
I will continue praying for you, Mel, and for dear Coleman (our youngest Scotland team member of 2008), as well as my "octopus boy" Spencer (from our S.S. days together), in addition to Jeff, of course. I will pray for God to heal, and help you to see the silver lining that He always seems to give us during those most difficult times in life, if we'll only look to seem them!
ReplyDeleteMel It's Emily from Modelogic. Have spent the morning being blessed by your blog. Just read back several posts to your story about the weaver. For years hanging on the side of my fridge is this..
ReplyDelete" Not until the loom is silent, and the she shuttles cease to fly,
Shall God unfold the canvas, and reveal the reasons why the dark threads are as needful in the weaver's skillful hand as the threads of gold and silver in the pattern he has planned"
Though you would enjoy it. We are still praying.
Hey Mel ~ You're family has been on my heart continuously. I am praying for strength, wisdom and peace during this time. I was so sorry to hear of your grandmother's passing, but also know the joy of knowing you will see her again. My grandmother passed at 93 several years ago and her faith was such a blessing and example to me. Everytime I read your blog Coleman's faith just astounds me, what a testimony he is to others. God has something special in mind for him. A song also came to mind by Casting Crowns "Praise you in this Storm". I can't begin to understand what you are going through as a Mom but this song reminded me how God never leaves us although at times we feel alone in the midst of it. It says, I will praise you in this storm and I will lift my hands because you are who you are no matter where I am, and every tear I've cried you hold in your hand, you never left my side and though my heart is torn I will praise you in this storm - I lift my eyes unto the hills where does my help come from, my help comes from the Lord the maker of heaven and earth. Just wanted you to know our family is praying too, along with all the others.
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