In the Right Direction

You know what I've been thinking about today? How quickly something can become routine in our lives. Like when you get a new car or add an animal to the family and before you know it, you don't remember life before it. I have felt that way about this journey many times. Days turn into weeks and suddenly you're pushing a wheel chair or reminding your child of his past and it has become routine. Maybe we're made that way to adapt and adjust and to become resiliant when necessary. I do know that this illness threw a big cog in our wheel and brought us to such a dead stop and then it stripped us down to the bare basics - just being at home and really pulling back the layers.

De-layering has made me realize that too much of my life has been about chasing something down, worrying about bad investments and overlooking what's right in front of me. When perspective is forced on us it feels like someone has our face in their hands saying stop, look at me, invest in my life and really know me. Somewhere in the back of my mind I worry that when we make it through this, I'll lose sight of that. Our pastor talks about that frequently and now I know why. These days and nights with Coleman, Spen and Jeff have been a gift. Yes, it's a struggle to care for someone 24/7 and yes sometimes I run into the kitchen to get what's requested, forget why I ran in there and get called back for something else I'll forget...trying to disguise my eye roll along the way.

Today I was surprised again at Coleman's ability to exercise. Twice today he did 10 leg lifts, 20 leg pushes with the band and 20 quad push downs on the bed. He seemed to be mostly motivated by how thrilled I was...whatever works! We are also doing some of the Brain Gym exercises together - crossing left and right sides of the brain and body.

Twice today I heard Coleman singing - just a line from a movie song or a commercial, but that was music to my ears. He enjoys doing things with his hands (the opposite of his brother's challenge) and made this clay flower for me.



No news on the medical side today - just another day of progress for which I am grateful. I woke early again chasing down thoughts in my head and in the quiet of the morning with everyone asleep, I read this:

To you O God belong the greatness and the might
the glory the VICTORY, the majesty, the splendor...
You hold strength and power in the palm of your hand
to build up and strengthen all.
And here we are O God, our God
giving thanks to you
praising your splendid name.

I worried a lot less today.