Mid Week Haul

There was a boy walking by me today in the den on his flat feet and he had a bit of speed to his walk and if I'm not mistaken, it was Coleman. It's the first time I have seen his steps have some rhythm and look almost like a normal walk! This gives him a feeling of confidence - doesn't exactly pull the rug out from under his mother either.

The other things we're working on are progressing too, but they will take some solid time. I was talking to Coleman and the man we're working with today and I said it's not like there is a true barometer for when his insides are getting better. I mean it's not like his spleen is going to finally walk across the room and we're all going to cheer...we are working on these issues one at a time, clearing them away layer by layer and finding more of him under every one. I can only say that this is a far more complicated issue that can hardly be explained by one label. The more mothers and patients I talk to, the more our symptoms line up. We trade tips on line and it helps because this illness feels like such an underground epidemic.

Last night was tough for Coleman so today he was a bit more quiet but was more on the move.

I took my turn at home schooling Spen and let's just say that even though my mom always said I should have been a teacher...that must have been somewhere before my hormones started shifting. Actually we did well and I can tell his reading skills are coming back quickly.

Debi - thanks so much for an amazing dinner - Spen ate macaroni "with salad in it" and the oatmeal bars are dented, very dented! Anne, your Subway run brightened Coleman's day and it was a good day for that. You guys have all shown such love to us, we look forward to repaying.

A small milestone for me while the boys were still sleeping, I finished reading the good book - all the way through. Fortunately, it has a happy ending. Funny at the end, there was a paragraph of reflective questions:

During the past year (and a half for me) what changed about your understanding of who God is?
What did you learn about HIm that you never knew before?
What challenges have you faced this past year that have shown God to you?

It seemed so written to me that I looked behind me left and right to see if somebody was looking over my shoulder. Then I closed the book and wondered, will I start over again?