Friday, November 13, 2009

Up Periscope

Just coming up above the surface for an update. The changes in Coleman are steady coming and the biggest is that as of one week and two days ago (who's counting) his hearing sensitivity is completely gone! It's a whole new world for him and us and we've been in bookstores, malls, an IMAX movie and the zoo. His pain has not lessened but his joy for normal hearing far outweighs it for now. He said he would take any physical pain compared to the hearing pain.

He feels like a "normal person" now and talks more positively about things. The doc says the seizure meds are beginning to do their thing and she continues to sharpen her focus on the broad spectrum he's dealing with. We're nearly 3 months in and there are shades of Coleman coming back every day. Simple things like hearing his voice singing in the back seat - memorizing lyrics and melodies again - his laughter at things that he thought not funny for the past year and his desire to be a part of the world again.

We're on a good stretch right now - understanding more every day why this process is long and tedious but so thankful for the battles won each week and for a doc and a team that understand this illness inside and out - and for the fact that she has taken others down this road before us and knows the way. We've said some goodbyes to fellow patients and wished them well as they regain their health and head back to their families. We all continue to bond as a family here and find a reason to laugh every day.

Here's to seeing shades of the son I have missed for a year now.
Do your best
Prepare for the worst
Trust God for the victory - I never forget those words.

7 comments:

  1. yay! We're so happy for the good news, Mel.

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  2. Mel -
    This is such encouraging news! I'm so happy for Coleman and this big change for the better. It must seem like a new world for him. thanks for keeping us updated!
    Love,
    Audrey

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  3. so, absolutely thrilled to "hear: the good news, just sad you have to stay so long.
    miss you and coleman
    xo sharon

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  4. THINKING ABOUT YOU TWO EVERY DAY AND SO GLAD TO "HEAR" THE GOOD NEWS ABOUT HIS HEARING THE WORLD AGAIN.
    TAKE CARE, AS YOU ALWAYS DO!
    LOVE,XO
    SHARON, "THE NURSE"

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  5. Hi Mel,

    We have been thinking about you and Coleman this Thanksgiving. We hope Coleman is continuing to improve and you are hanging in there. Any news?

    JoAnne and Kate Seawell

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  6. Dear Ms. Cox:
    Just found your blog and have spent the past couple of hours reading and weeping for you and your family and reliving my own nightmare that I am so ready to leave behind.

    Where did you go? No posts since 11/13, is everything ok? How did Dr.R's treatment work out? All my thoughts, prayers and love to you.

    -T

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  7. Dear Mrs.cox, Im glad to hear that coleman and spencer got to see each other, and got to be outside in the snow. I hope yall had a wonderful christmas and new years. I will continue to pray everyday for you and your family.

    Best wishes
    -Kate seawell

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